NoTube - Patient Testimonials

Patient Testimonials

The patients listed below have all gone through one of NoTube’s weaning programs successfully. Read their stories and contact them to find out more about what it feels like to participate in one of NoTube’s weaning services.
 

 

 

Daniel Harrison
Great Britain
Summer 2011
kevin.harrison@me.com

Daniel and his family are from Nottingham, Great Britain.  He has an Autistic Spectrum disorder. During his first month of life he started to drink and eat. However, he vomited a lot and suffered from a reflux. After he developed a strong oral eating aversion. As a consequence he refused any kind of food and he stopped drinking as well. At the age of 1,5 a nasogastric feeding tube was inserted. Since that time, he never tried to eat orally by himself and as a result of Daniel´s long-term feeding via a tube, he got tube dependent. After unsuccessful treatment onsite, his family heard about the Graz feeding tube weaning model and contacted NoTube. They decided to participate in the program and at the age of 5, in April 2011 Daniel and his family visited Graz and started with the tube weaning treatment. After one month he was nearly tube weaned. Finally, Daniel was successfully tube weaned at home in Summer 2011.

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Reagan Bentz
USA
16.12.2010
traciemarcus@yahoo.com

Reagan and her parents Tracie and Tim from Bartlett in the United States registered in December 2010 for NoTube’s Netcoaching program. Reagan has some very severe medical diagnoses, which had made it necessary for a feeding tube to be placed in the first place: Double inlet left ventricle, aortic atresia, Laevo-transposition. One week after birth she already had her first operation, followed by another in October 2010.
As a negative side effect Regan got NG-tube dependent. So their parents contacted the NoTube team in December 2010  and on December 12th, when Regan was only 5 month old, the Netcoaching program started. NoTube´s medical and psychological professionals coached Regan and her parents through the Netcoaching program and after only 4 days she got her last tube feed. Reagan is tube weaned since one year, which is a blessing for the whole family.

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Daniel Gronow
Australia
23.04.2011
mandyxp@hotmail.com

Daniel and his parents Amanda and Brendan from New South Wales in Australia registered in March 2011 for NoTube’s netCoaching program. Daniel was a monochorionic twin pregnancy with discordant growth, followed by severe intrauterine growth restriction with reverse end diastolic flow, due to a marginally inserted umbilical cord to the placenta. Amanda got an emergency caesarean at 29 weeks of gestation.
So Daniel was premature and small for date, which had made it necessary for a NG-tube to be placed. During feeding Daniel by tube he showed a lot of negative side effects of tube feeding. He vomited, retched and gagged. The NoTube team analysed Daniel´s conditions and found out, that none of his diagnoses in their current state made it necessary for him to be tube fed! When Daniel and his family started the NetCoaching program, his tube was already placed for 10 month. Just one month later, after starting with the netCoaching program, Daniel was tube weaned and he has been tube-free ever since.

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Do you want to share your story regarding your experiences with NoTube?

Send us an e-mail with your story and pictures to experience@notube.at

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